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Kelly Spain tells her friend, physician Julie Kurek, about the challenges she's faced being a caregiver for her husband, Cedric, who lives with Parkinson’s disease.
Claudette and Michael
“This is literally the toughest guy I've ever known. And so to see Parkinson's, do that to him where nothing else could …You understand that everybody gets old and everybody deteriorates, but when you see it firsthand, you know, it was really startling to see it.”
Michelle and Dr. Gus Alva
“We’ve become a community… It gives me a lot of joy – I think about my mom in those moments and I know I'm making a difference. I’d wanted to create a really large group, and a person told me you know what? Even if you help one person, they are someone you have helped. And I always remember that.”
Steven and Donn
“That's what I'm going for every day is to get a laugh and make somebody else laugh. If you don't keep your sense of humor, life can get very dark. And the best gift that you can give anybody is the gift of time. You don't have to wrap it up and put a bow on it. You just have to be there, and you've been there for me.”
Louis and Diane
“I kind of got in touch with myself going through what I'm going through. It gave me a different outlook on life. In fact, I appreciate things that I used to take for granted.”
Michael and Jeff
“I think when people first diagnosed, you need to be very in tune to opening yourself up and just sharing it up front. People are so happy to help, and I just can't believe the support I’ve received.”
Millie and Dr. Gus Alva
“It was very painful for me to see what was happening to a man that I remember was very strong … But just gathering with other Hispanics in our community, he's able to see that he's not alone in this journey. He's not the only one dealing with this disease.”
Harrel and Diana
“I know for you it’s painful, but you inspire me. That’s why we just need to keep sharing over and over. It’s a calling because we have to educate so many people about a disease where more and more people are going to be diagnosed.”
Kelly and Julie
“It’s ever changing. No one can ever expect what each day may bring because each day is different. Parkinson's has become our life for the last six, seven years. I'm just trying to find who I am outside of a caregiver for Cedric.”
Alex and Susan
"I don’t want Parkinson’s. But it actually taught me that there's so much more I can do to make my life complete. And it's given me a new lease on life."
Cherie and Cynthia
“My dad was always this kind person that regardless of what he was going through, it never showed.”
Darryl and Pam
“Try to keep that positive attitude so that negativity won’t seep in. Parkinson’s is a disease that can be dealt with.”
Kerry and Tara
"Our experience with her disease definitely taught me to take opportunities when they present themselves."
No two stories are alike. Yours, Truly welcomes you to voice yours. By sharing your story, you can help increase understanding, build connections, and preserve your story for future generations.