Shared Stories Speak Volumes
Las historias compartidas revelan todo

Every journey with Parkinson’s disease offers unique lessons. Join those speaking out.

Raising Awareness Through Storytelling and Educational Resources
Crear conciencia en la comunidad hispana, al compartir historias y recursos educativos

By making these materials more accessible, we hope to encourage more voices to help us amplify the diverse stories present in the Parkinson’s community. Access some of these resources directly by clicking below.

Al hacer estos materiales más accesibles, queremos alentar a la comunidad para que nos ayudes a compartir las historias sobre tu experiencia con el Parkinson. Haz clic abajo para obtener más información.

The Story Behind the Story

Parkinson’s disease (PD) affects about one million people in the United States.

The signs and symptoms of PD can vary, with people experiencing both motor and non-motor symptoms including anxiety and depression, loss of mental sharpness, and hallucinations and delusions, which may be experienced by around 50% of people with Parkinson’s over the course of the disease.

By recording and sharing patient, caregiver, and advocate stories, we aim to connect with others and motivate them to speak up and speak out about their experiences.

These symptoms can create challenges both for those experiencing them as well as caregivers and family who struggle to discuss them or fear what they might mean for their loved ones. However, it is important that these symptoms are addressed.

Know the facts. Not the stigma.

Throughout history humans have shared stories that reflect our experiences and help us understand ourselves. Through storytelling and Yours, Truly we will honor the uniqueness of the person living with Parkinson’s disease for future generations, while also enabling listeners to connect their untold experiences with the stories shared.

Sharing your story may encourage other patients and their loved ones to recognize symptoms, speak up, start a conversation, or even seek help from a healthcare professional.

Learn More
People

For additional Parkinson’s disease resources, visit:

What's Your Story

We believe the voices of people affected by Parkinson’s disease matter. Yours, Truly is working with the national nonprofit organization StoryCorps to provide a forum for the community to record conversations about their lives, pass wisdom from one generation to the next, and create a legacy.

Through elevating these conversations, we hope to build empathy and connection within the Parkinson's disease community and increase understanding of Parkinson's disease symptoms and their impact on patients and their loved ones.

Start Sharing

Creemos que las voces de las personas afectadas por el Parkinson son importantes. Cuenta tu Historia, junto con la organización nacional sin fines de lucro StoryCorps, se han unido para ofrecer un foro en el cual la comunidad puede grabar las historias de sus vidas, compartir la sabiduría de una generación a otra y así crear un legado.

Al compartir estas conversaciones, queremos crear empatía y fomentar una conexión dentro de la comunidad de Parkinson y así fomentar la comprensión de los síntomas de la enfermedad y su impacto en los pacientes y sus seres queridos.

Cuenta tu Historia
Person
Story Corps

Founded in 2003, StoryCorps has given people of all backgrounds and beliefs, in thousands of towns and cities in all 50 states, the chance to record interviews about their lives. The organization preserves the recordings in its archive at the American Folklife Center at the Library of Congress, the largest single collection of human voices ever gathered, and shares select stories through StoryCorps’ broadcasts and podcast on public media, animated shorts, digital platforms and best-selling books. Learn more at Storycorps.org.