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Shared Stories Speak Volumes

Every journey with Parkinson’s disease offers unique lessons. Join those speaking out.

Raising Awareness Through Storytelling and Educational Resources

By making these materials more accessible, we hope to encourage more voices to help us amplify the diverse stories present in the Parkinson’s community. Access some of these resources directly by clicking below.

The Story Behind the Story

Parkinson’s disease (PD) affects about one million people in the United States.

The signs and symptoms of PD can vary, with people experiencing both motor and non-motor symptoms including anxiety and depression, loss of mental sharpness, and hallucinations and delusions, which may be experienced by around 50% of people with Parkinson’s over the course of the disease.

By recording and sharing patient, caregiver, and advocate stories, we aim to connect with others and motivate them to speak up and speak out about their experiences.

These symptoms can create challenges both for those experiencing them as well as caregivers and family who struggle to discuss them or fear what they might mean for their loved ones. However, it is important that these symptoms are addressed.

Know the facts. Not the stigma.

Throughout history humans have shared stories that reflect our experiences and help us understand ourselves. Through storytelling and Yours, Truly we will honor the uniqueness of the person living with Parkinson’s disease for future generations, while also enabling listeners to connect their untold experiences with the stories shared.

Sharing your story may encourage other patients and their loved ones to recognize symptoms, speak up, start a conversation, or even seek help from a healthcare professional.

Learn More

For additional Parkinson’s disease resources, visit:

What's Your Story

We believe the voices of people affected by Parkinson’s disease matter. Yours, Truly provides a forum for the community to record conversations about their lives, pass wisdom from one generation to the next, and create a legacy.

Through elevating these conversations, we hope to build empathy and connection within the Parkinson's disease community and increase understanding of Parkinson's disease symptoms and their impact on patients and their loved ones.

Start Sharing
Story Corps

Yours, Truly was developed in 2021 in collaboration with StoryCorps.

Founded in 2003, StoryCorps has given people of all backgrounds and beliefs, in thousands of towns and cities in all 50 states, the chance to record interviews about their lives. The organization preserves the recordings in its archive at the American Folklife Center at the Library of Congress, the largest single collection of human voices ever gathered, and shares select stories through StoryCorps’ broadcasts and podcast on public media, animated shorts, digital platforms and best-selling books. Learn more at